End-of-life and palliative care

As we age, staying independent and living comfortably in our own homes becomes increasingly important. However, life-limiting illnesses can present challenges that make daily living difficult.

What is end-of-life care?

End-of-life care focuses on providing comfort and support to people with a terminal illness in their final stages of life. It acknowledges that a cure may not be possible and prioritises managing symptoms and maintaining quality of life. This care can be provided at home, in a hospice, or in a care home setting.

What is palliative care?

Palliative care is a broader term encompassing care for individuals with life-limiting illnesses. It can be provided alongside curative treatments and focuses on managing symptoms like pain, nausea, and shortness of breath, as well as addressing emotional, social, and spiritual needs.

Benefits of end-of-life and palliative care

If you or someone you care about is living with a life-limiting illness in Plymouth, navigating healthcare options can feel overwhelming, but there is support that can help provide relief, and these include:

• Improved symptom management: Pain can be a significant concern, but effective medication and pain management
• Enhanced quality of life: Maintaining independence can help you participate in activities you enjoy for as long as possible.
• Emotional and spiritual support: Facing mortality can be emotionally draining. Talking to loved ones, spiritual leaders, or counsellors can provide support.
• Practical guidance: Organisations such as St. Luke's Hospice can help you access resources, and make informed decisions.

Maintaining independence and comfort at home

Living with a life-limiting illness doesn't have to mean sacrificing your independence. Here are some ways to stay safe and comfortable in your own home:

• Planning ahead: Discuss your wishes with your loved ones and doctor regarding care preferences and future needs.
• Early intervention: Seeking early assessment and treatment for symptoms can slow down their progression.
• Assistive equipment: Various tools can help you maintain daily activities and minimise discomfort.

Who can help me in Plymouth?

If you or someone you know requires end-of-life or palliative care, then it's important to ask for help. Several organisations can provide support. Remember, you are not alone.

St Luke's Hospice Plymouth is an independent charity providing specialist advice and support to people with progressive life-limiting illnesses in Plymouth, South West Devon, and East Cornwall.

The NHS website offers a wealth of information on end-of-life care and palliative care. Additionally, charities like Marie Curie and Hospice UK have informative websites and helplines.

View an A to Z Directory of end of life and palliative care-related groups or organisations

St Luke's Six Steps for Quality End-of-Life Care

St Luke's Hospice Plymouth has been providing training to local care homes and domiciliary care agencies. The Six Steps + programme does not hold any inspectorate authority such as the CQC, so it does not monitor or regulate day-to-day care; however, it can verify that at least two members of staff have successfully completed the training to become End of Life Champions.

View a list of the Six Steps + Verified End-of-Life Care Providers in Plymouth

Frequently asked questions

What is the difference between end-of-life care and palliative care?

End-of-life care focuses on the specific needs of someone approaching the end of their life, aiming for comfort and symptom management. Palliative care can be provided at any stage of a serious illness, not just at the very end, and focuses on improving your quality of life through symptom management, emotional support, and practical assistance.

How can end-of-life care and palliative care help me?

These services can help you manage pain and other symptoms, such as nausea or shortness of breath. They can also provide emotional and spiritual support for you and your loved ones. Additionally, they can offer practical assistance with daily tasks like bathing or dressing.

Who can benefit from end-of-life care and palliative care?

Anyone with a serious or life-limiting illness can benefit from these services, regardless of age or diagnosis. This includes people with cancer, heart disease, chronic obstructive pulmonary disease (COPD), and other illnesses.

Where can I receive end-of-life care and palliative care?

These services can be provided in various settings, including your own home, a hospice, a hospital, or a care home. The best location depends on your individual needs and preferences.

Please look at the end-of-life and palliative care directory to view a list of organisations in Plymouth.

Will I have to give up curative treatment to receive palliative care?

No, palliative care can be provided alongside any other medical treatment you may be receiving, including curative treatment aimed at curing your illness.

How do I access end-of-life care and palliative care in Plymouth?

You can discuss your options with your GP. They can refer you to a palliative care team or other relevant services.

Please look at the end-of-life and palliative care directory to view a list of organisations in Plymouth.

How much does end-of-life care and palliative care cost?

Most NHS services related to end-of-life care and palliative care are free at the point of delivery. However, there may be some costs associated with specific medications or equipment needs.

What are my options for care at home in Plymouth?

There are various home care options available in Plymouth, including support from district nurses, home care assistants, and other healthcare professionals. You can discuss your needs with your GP to explore suitable options.

Please look at the end-of-life and palliative care directory to view a list of organisations in Plymouth.

How can I talk to my family about my wishes for end-of-life care?

Having open and honest conversations about your wishes for end-of-life care with your loved ones is crucial. St. Luke's Hospice can help provide you with information and access to resources.

What is a Lasting Power of Attorney for Health and Welfare?

A Lasting Power of Attorney for Health and Welfare allows you to appoint someone you trust to make decisions about your care if you're no longer able to do so yourself.

What resources are available online or through helplines?

The NHS website offers a wealth of information on end-of-life care and palliative care. Additionally, charities like Marie Curie and Hospice UK have informative websites and helplines.

What if I don't want to die at home?

You have choices regarding your place of care. Discuss your preferences with your doctor. Options include hospices, care homes, or hospitals, depending on your needs and available services.

Is the information correct?

Let us know if the information on this page is wrong and needs to be updated.

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